The Red Devil

Yesterday was our Chemotherapy Teaching Day at the infusion center. I learned a lot about what my treatment will consist of. It’s AC followed by T. First 4 rounds of chemo are AC with Nuelasta. The A is for Adriamycin (or Doxorubicin hyrdochloride) more commonly known as “The Red Devil” because it is a red liquid that comes in a tube and is super toxic.  Put it this way, if it drips on you or out of your IV,which I surely hope the nurse gets correctly in my vein, it can scare the hell out of your skin.  Oooo please sign me up!  It belongs to the general group of chemotherapy drugs known as anthracycline antibiotics. This chemo drug stops the growth of cancer cells causing the cells to die. Cancer cells grow quickly, so do the cells for hair and nail growth as well, hense the side effect of hair loss. Common side effects are decreased white blood cell and platelet count, loss of appetite, hair loss, nausea, and vomiting. Sounds fun right?

Then there is C which is for Cytoxan or Cyclophosphamide which belongs to a general group of chemo drugs known as alkylating agents. It has the same effect on cancer cells as Adriamycin. The side effects are decreased white blood cells, hair loss, nausea, vomiting, loss of appetite, sores in mouth, diarrhea, stopping of menstrual periods in women, and tiredness.

Now while I am getting these drugs I also get pre-meds that consist of decadron (dexamethasone) a steriod used to combat nausea (and make me gain 10 lbs, Kim Allafi-I will be in Crofton Bootcamp when this is over!), Ativan for any anxiety if needed, and some other drug also for nausea that is slipping my mind right now. After I get these two drugs on Chemo day, I go back the next morning for a shot of Neulasta. This shot helps to boost my bone marrow to make more white blood cells to aid my immune system. I only have to get this shot after the AC regimen portion of chemo (first 4 cycles).

The last 4 cycles of chemo consist of T for Taxol. Taxol is in the general group of chemo drugs known as taxanes. It is a mitotic inhibitor as it stops cell division resulting in cell death. Common side effects are the same as above also numbness and tingling in hands and or feet and muscle and bone aches for 3 days after treatment. Good news is I won’t endure the nausea with this part of treatment so they tell me. The nurse I was with today is a breast cancer survivor and endured the same treatment as me only hers was for a longer duration. So I’m feeling confident taking her word for it. Chemo starts next Friday the 12th. I know I will loose my hair so I’ve made a plan to go back to Amy’s of Denmark and have my hair cut before that happens. The nurse says it will most likely begin at the start of my second treatment. I figured I would dictate when I am going to loose my hair and not cancer. I don’t particularly like being told what to do. Take that cancer!

Chemo sure sounds scary. But aren’t the possible side effects of any drugs always scary? I’m trying to enter this phase of my journey as positive as possible. I know staying that way will be hard, but it’s mandatory for me to get through this with a smile. (please remind me I said this when that smile starts to fade)For now til chemo day I am just going to try and enjoy my time as much as possible. Feels strange not having any doctors appointments to go to for the next 10 days.

Sensory Overload

In addition to talks of surgery, chemotherapy, radiation, mastectomy and reconstructive surgery I had another important issue to tackle. Since one of the possible side effects of Chemotherapy is early menopause, we also decided to meet with a fertility doctor to discuss our options.

After receiving all the information we decided to proceed with the egg retrieval process of IVF. We will be working with Shady Grove Fertility.  This involves about 7-10 days of giving myself shots and having daily appointments for blood work and ultrasound. Once the eggs are at a desirable size, I go in for a minor surgery to have them extracted and frozen. All in all its a really wonderful reassuring feeling knowing we can still have a baby when all this treatment is said and done.

Next stop surgery then our first meeting with my oncologist to discuss my chemo schedule. Time to get down to business. First things first, I am in need of a nap. So much information.

My New Normal

Doctors appointments. Everyday practically. First stop meeting with the surgeon. Dr. Tafra was the surgeon I selected. Chris and I met with her to discuss my diagnosis, prognosis, and treatment plan.  I have Infiltrated Ductal Carcinoma, Stage 1 Grade III, Triple Negative Tumor. Ok, so stage 1. It can’t be too bad? I mean a lumpectomy and maybe some radiation. I’ll be good to go in a couple weeks, right? Wrong. The key word or words in my diagnosis are Grade III and Triple Negative. The staging has to do with the size of the tumor and how far it has spread. So for right now (yes it could change) its a 1. The grade shows how rapidly the cells change.  Grade III is aggressive.  Great. Triple negative means that it tested negative for the three main hormones that usually fuel cancer growth.  In a nutshell, they don’t know what fuels it.

And because of these two lovely things my doctor utters the words I’ve been dreading to hear. Chemotherapy.

I’m sorry doc…… Can you repeat that????

On August 21st I went to AAMC Breast Center in Annapolis to have them check out the lump I found in my right breast. After a mammogram and ultrasound the radiologist was pretty convinced the mass was a Fibroadenoma. But decided just to be sure they wanted a biopsy. So the next day I had the core needle biopsy done. This radiologist said the same thing. Looks like fibroadenoma. Results would be back in about 48 hours. So on Friday, as usual,I did my running around of errands. Prepping for our vacation to Ocean City, MD. On my way back from the post office I realized I had a missed call from the hospital. Finally! Now I can relax and enjoy my vacation! I called the doctor back and he said “Hi Amber. I’m really sorry. I wish I had better news for you. The pathology report shows it is in fact CANCER.”

I’m sorry doctor……can you repeat that?